Outcomes of hypertrophic cardiomyopathy in Japanese children: a retrospective cohort study

Hiroki Mori, Tadahiro Yoshikawa, Hitomi Kimura, Hiroshi Ono, Hitoshi Kato, Yasuo Ono, Masaki Nii, Takahiro Shindo, Ryo Inuzuka, Hitoshi Horigome, Masaru Miura, Keiichi Hirono, Tomio Kobayashi, Shigetoyo Kogaki, Yoshiyuki Furutani, Toshio Nakanishi*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

3 Scopus citations

Abstract

There has been no multicenter study on the prognosis of pediatric hypertrophic cardiomyopathy (HCM) in Japan. Therefore, we conducted a retrospective multicenter observational study on the long-term survival rate in patients diagnosed with HCM under the age of 18 between 1990 and 2014. Twenty institutions participated. A total of 180 patients were identified. The median age at diagnosis was 5.8 years old and median duration of observation was 8.3 years. Although six patients (3%) deteriorated into the dilated phase of HCM, no patient received heart transplantation. Freedom from death at 1, 5, 10, and 20 years were 97%, 92%, 84%, and 80%, respectively. There were 26 deaths. Among them, 11 patients died suddenly, presumably due to arrhythmia, and 15 patients died of heart failure. The presence of heart failure symptoms and a greater cardiothoracic ratio were significant risk factors for heart failure-related death. There were no significant risk factors identified for arrhythmia-related death. In conclusion, the prognosis of pediatric HCM in Japan is good and similar to those reported in population-based studies in the United States and Australia. Significant risk factors for heart failure-related death were identified in pediatric patients with HCM in Japan.

Original languageEnglish
Pages (from-to)1075-1084
Number of pages10
JournalHeart and Vessels
Volume37
Issue number6
DOIs
StatePublished - 2022/06

Keywords

  • Children
  • Hypertrophic cardiomyopathy
  • Mortality
  • Risk factors

ASJC Scopus subject areas

  • Cardiology and Cardiovascular Medicine

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